Oh boy where to begin. Ok let me first get this out of the way. Yesterdays thread on CWD regarding
JDRFs new direction was appalling. Not all but most
posters were insulting to others, degrading JDRF and in my opinion disrespectful to PWDs.
(I WARN YOU, THIS POST IS A BIT SCATTERED. WE ARE BATTLING CONSTANT LOWS AND IM TIRED. BUT NEEDED TO SAY THIS.)
I was on that thread. Did ya see me? I was "the left wing radical who is implying theres a conspiracy within the FDA and Big Pharma to keep the cure away from us". Yup. I said that. I can say whatever I damn well please. I never put anyone in the DOC down while doing so, so why did it bother them? I dont know.
This is how I see it. JDRF raises money for a cure, for research in that endeavor which also includes new advancements to better the quality of life until we get there. Amen! Thats a wonderful thing in MY eyes. I dont ever want Justice to feel because there isnt a cure his life is shit, his life isnt worth living or isnt as good as it could have been.
You all know my work with JDRf. My love and passion for the organization. They have been a second family for us here in Vegas and I will continue to support them as they do us.
Now Im sure you are curious "what conspiracy Lexi?". Well...Big pharma makes a shitload of money off of our childrens disease right? Thats not something new. Well I believe, and maybe I watch too much Michael Moore, the FDA and CDCs pockets are getting fatter too. No not legall, under the table, corrupt. So many drugs on the market that have a side effect of death yet they exist. Why? Cause there is money in them. For the Diabetes community that money is in ALL the supplies we need. So in a nutshell I believe thats part of the reason we have yet to see a cure.
Now the other side of it. Its hard! Not only must Islet cells be regenerated they need to figure out how to keep the immune system from attacking them again!
So what do we do? Do we put all our hope in a cure that my friends Sarah, Scott, Leann, and Kay were told was coming when they were kids? Or do we split focus and try and better the quality of life with diabetes? You know my answer. I guarantee you ask any mother who lost their child to type 1 if they could have their child back even though there is no cure, they would not even hesistate! Or the man who lost his eyesight.
Yes type 1 can take lives and cause complications. Yes I want a cure more than anything in the world. Wait no pause that. I want a cure but more than anything I WANT MY SON ALIVE HAPPY AND HEALTHY DIABETES OR NOT.
Another upsetting point was that some were implying our kids need a cure and why was JDRF focusing on adults too. Well without getting into that, or using obscene words Id like to share MY vision of the day the cure is "given" out.
Im on a line. A long one. Filled with children of all ages, adults of all ages, people of all creeds and financial statuses. Im standing in line with Laura whos lil Nate has a bag of buttery goldfish he will devour once hes gotten his turn. Joe and Reyna are talking about the hours of endless skating they will do, Justin and Caleb have decided we should hit a bakery that of course has peanut free and gluten free for Sugar and Cam. Kacey is helping keep the lil ones calm, Sweetpea and Lovebug are playing pattycake, J, B, and L are talking Meris ear off with excitement.
Grace, Sugarboy, Maddy, and all the other D fams I love are there too!
Wait. Wheres Justice?! Well hes right behind me with Scott, Sarah, Kim, Crystal, Susan, Scotty J, AnnaZ George, Cherise, Kay, Marcy, and Leann (and the other boatload of PWDs I love). They are having some sort of pow wow. Hes trying to convince them when we are done here to come to Vegas to celebrate! "Guys!! Buffets!! No counting carbs!".
See I dont see a cure just for our kids, but for everyone. We are in this together. Period.
We need to see how blessed we are. We have access to insulin. People in 3rd world countries are dying because they dont. People here in our country are without insurance and have to beg and steal for insulin or strips. I am no fool. When a cure comes people like me whos child is on Mediciad will not be able to afford it. So what I give up hope? No. We keep on doing what we are doing. We advocate and support each other. We help those who cant afford the life saving juice we take for grantide.
And we keep praying for a cure. Hell yea!
Cure or not we keep going. Let our kids know life is good!
Diabetes be damned.