So perhaps I need a new blog name? New logo? New bio?
Let's see last we left off Justice had Type 1 Diabetes, well duh, and now an unofficial diagnosis of Alopecia.
Let me back track.
A few months ago I noticed BOTH of my boys had B.O. Bad.
Hairy knuckles, hairy toes. You get it.
I voiced my concerns to endo, I know a lot about the endocrine system and B.O in young kids can be a red flag sometimes.
So we made a double appointment.
Endo found pubic hair on Justice and a little fuzz on Synsyre. She asked some ?s about Biggahs history and mine.
She suggested doing a full lab panel. She said she wanted to check for signs of early puberty.
So last week as you know Justices lab came back, which coincided with the whole Alopecia craziness.
Well today Syns came back.
Nurse called. I assumed it was about pump supplies rx. When she said labs were in for Syn, I didn't even think about it. I knew all was good.
She started to tell me BG was elevated---I almost dropped the fucking phone---then she said but phlebotomist notated that he had just eaten, BG was 113, so since he didn't fast it was perfect. Phew!
Then she said thryoid was .1 over normal, high end of normal is 2.4, his (and J) is 2.5, she said definitely NO biggie.
She then said, "One of his adrenal tests were abnormal. A certain hormone we make, he has too much". I stopped eating my apple. I almost threw up.
She said CDE would call me tomorrow to schedule more tests, and that we need to get his xray (and Js) done to show bone age.
I hung up.
I paniced. I cried. I almost passed out.
Then I said NO. I need to know more.
I called and got the name of the hormone its called "seventeen hydroxypregnenolone". Well fucking A.
Normal levels are under 72. Synsyres are 116.
I googled, and got a bunch of medical jumbo which made no sense. And then I found information on "high levels" of this hormone.
Its called Congential (yes passed on from parents. Greeeat) Adrenal Hyperplasia. Here's the link for more info, click here.
Basically it has to do with early puberty, fast growth as a kid, which can cause stunted growth as an adult and other awful shit like infertility. Its the same disorder that causes girls to have both male and female genitals!
Its basically TOO much male hormone, so for boys its not the same effects.
We now have to have a test done, adrenals will be manipulated,a hormone is given to Synsyre and labs drawn to see if it is producing too much or not. If so we move on to steriod/hormone therapy.
If not we retest in 6 months? Something like that. I spaced out I won't lie.
So now we pray.
So hmmm what's a good blog name for 2 kids with Endocrine disorders?
"For Fucks Sake" ?